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Edward GROBMANParticipant
Hello,(Pal)
the drug is “krystexxa”. Or Pegloticase intravenous
my doctor is suggesting this treetment,and so far I kind of resisting because he seems me overly entusiastic about how he presents it, as the closest thing to cure, which it is not, besides there is a bag of side effectsthat comes with it.But I may give in and go for it, not so sure yet
I will like to point out to you anatomicaly to where my deposits are shown on DECT and that’s where I experience the stiffness and pain in the bottom of my R foot:
3 mm linear deposit betveen 3 and 4 metatarsals, and almost liniar 2.5 mm between calceneus an cuboid bones .Also Doted singular deposits in few other places
I describe this only to eliminate the idea of plantar syndrome
it is definitely Gouty moderate deposits but in such areas that makes walking a challenge
Sorry to be so “scientific”
Quastion About colchicine: since the beginning of the AP I took colchicine only when I felt the beginning of each flare for a couple days(and not everyday as is advised by some doctors).I was and still am convinced by a idea that colchicine is a dangerous drug that suppresses immune system and therefore I used it that way especially considering COVID.
Was this possibly a mistake ….? Should of I used it once a day for a
3-6 month or so .Share your opinion ,please.
Also, from reading your post I don’t understand the severity of your gout and it’s location and why you had to use canes for so long, if you don’t mind sherring
That’s it for now
Thank you, PalEdward GROBMANParticipantHi there.
Some new developments to report. Still confusing
My UA getting lower latest 4.3 on medical blood test while no inflammation present. ( my own UA Sure mashing shoved 4.9 same day a few hours later)
Then a few days later begins a minor swelling at my troubled with Tofied left toe and moderate but debilitating pain trughout many joints of both feet mostly bottom soles.
as I mentioned I pest a DECT in March that shoved some mild to moderate cristalls at the center bottom of R foot and significant tofi deposit Left big Toe , with mild bone deterioration in it
the tofi size not getting smaller,and I have no way to now if my 3 mm linier deposit on the bottom of my hill is dissolving w/o repeating the DECT
I have these moderate pain waives Avery 2 weeks or so , trying to keep the diet but not religiously , as you telegraphing, that diet is not the main key
I was recommended crystenza as a way for a speedy disolvement of tofi and A way out of my chronic discomfort with pain waives and possible way out of the continued intimacy issues
What do you think.? What are the draw backs of krystenza in my case
P.s is it still no way to register anonymously?
ThanksEdward GROBMANParticipantThanks for fest reply
When is after treatment point could be considered in your view?
From what I believe I red it’s not a real event
Thanks
Veteran
I am in L.A and may fall asleep prior to your answer so forgive if I want reply soon
ThanksEdward GROBMANParticipantHi again.
Unfortunately my original message posted prematurely before I corrected the misspelling and therefore even the header of my post is absolutely unclear of the fact that I am talking about.
My whole idea was to bring attention to the readers to see if other people experienced similar reaction to cOvid vaccine.
Id like to ask for a favour please correct the spelling at least the header (sorry I could not figure out how to edit my text myself)
also
I would like to login with a username rather than my real Name and did not see how.
Now a “interesting report” Monday I want shopping to Costco grabbed a rack of pork ribs and desided to test my low 4.5 UA Was a BAD IDEA my left toe the one with tophi presented me a “firework” on Tuesday . It is pretty bad in sense of size in colour of the Bump.
Surprisingly the inflammation and pain rose sharply when I applied ice pack
Normally pain releaves when I apply cold
It is Friday and I still sitting with a big red bump An my let toe
Pain is mild luckily
Please help to reregister and correct the spelling
Have a nice painless weekend all
Veteran -
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