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I looked through past posts, and it seems like this discussion has been littered throughout as answers to different questions, but not directly related as its own post.
As a person who has been on allipurinol for about 6 weeks, but only been on the 300 level for 2.5 weeks, here is my experience:
1) bad flare up when went from 100-200, and 200-300
2) since been on 300, have had a lot of “wannabe” flare ups where my knees wil swel, but at a lot lesser level than before
3) most of the small pains in the foot, wrist, and even neck have dissapeared.
4) the site of my bad flare ups (Right Ankle, Right foot, left and right knees) feel warm and tingly regularly, but have not increased to the pain level of the past.
5) im still vegeetarian (have been for 8 weeks), but just started yesterday adding chicken into my diet every other day, and will hopefully gradually add the other meats as well)
My questions:
What are your experiences on time frames for allipurinol to work, Im definately better, but far from my usual activity level..ie, i can walk, but there is no way i could go for a jog right now, it would be too painful
Once you have been on the allipurinol, is your experience a pain free life??? how about the lifestyle of diet and alchohol while on the allipurinol, do you drink beer and eat meat?
Have any of you experienced full blown flare ups while on the CORRECT dose of allipurinol, Im religious about this stuff, and will never miss a dose, Im happy to be on it the rest of my life if it works,
Thanks for the help.
JP
JP, I STARTED TAKING 200MGS OF ALLOP THREE MONTHS AGO I HAD A BAD FLARE 5 DAYS LATER WAS ON PREDNISONE FOR MONTHS BEFORE AND HAD TO UP THE DOSE WHEN FLARE HIT. SINCE I STARTED THE ALLOP THING HAVE GOTTEN BETTER. I STILL HAVE SOME PAIN IN MY ANKLE BUT THE WAY IT'S GOING I'M SURE IN A SHORT TIME THIS WILL BE A THING OF THE PAST. I DON'T DRINK ANY MORE BUT FROM WHAT I'VE READ ON HERE. AFTER YOU GET GOUT UNDER CONTROL YOU CAN HAVE A FEW DRINKS NOW AND AGAIN AND NOT SUFFER FROM IT. AS FAR AS MEAT I REALLY TOOK IT EASY ON IT FOR AWHILE. BUT NOW I'M BACK TO EATING JUST ABOUT ANYTHING I WANT. I JUST DON'T OVER DO IT. ALTHOUGH I NEVER COULD PIN POINT ANY ONE FOOD THAT TRIGGERED MY GOUT. AS FAR AS JOGGING FROM WHAT I'VE READ ON HERE MOST GOUTIES GIVE IT UP BECAUSE THEIR JOINTS WON'T TAKE THE POUNDING. I'M SO GLAD THAT I CAN TAKE ALLOP AND THE IT'S FINALLY CLEARING UP MY GOUT. I'VE HAD ONE FLARE AFTER ANOTHER SINCE LAST OCT. DOCTOR FINALLY FOUND CRYSTALS IN MY ANKLE FLUID AFTER THE SECOND TRY. FIRST ONE IN JAN. THEN AGAIN IN MAY. MAN WAS IT A LONG WINTER AND SPRING. WOW DIDN'T MEAN TO GET CARRIED AWAY BUT TO CUT TO THE CHASE. MY RHUMATOLOGIST TOLD ME IT CAN SOMETIMES TAKE UP TO A YEAR TO GET BACK TO FEELING NORMAL. BUT ONCE YOU GET THERE IT'S LIKE YOU NEVER HAD GOUT AS LONG AS YOU STAY ON YOUR MEDS. SO HERE'S HOPING . GOOD LUCK. LIMPY P.S. SORRY ABOUT THE CAPS
Thank you,
As far as the prednisone: Ive been a little worried because hes had me on 20 mg for about 8 weeks, I stressed to him how important it is for me to get better (my work is physical…and i was on a prety limited time frame for alternative work). Since ive taken it regularly, im not sure if it has much of an affect on the actual attacks, because when i have had a flare up, I have resisted increaseing it. Im less concerened with the side affects of pred, and more concerned with the long term mgt of gout,
Thank you for your experience, It helps me. I got hit rather quickly with multiple gout attacks as well, with no prior history of it. Hopefully we both get it under control quickly as to not suffer long term joint damage,
JP
Thank you,
As far as the prednisone: Ive been a little worried because hes had me on 20 mg for about 8 weeks, I stressed to him how important it is for me to get better (my work is physical…and i was on a prety limited time frame for alternative work). Since ive taken it regularly, im not sure if it has much of an affect on the actual attacks, because when i have had a flare up, I have resisted increaseing it. Im less concerened with the side affects of pred, and more concerned with the long term mgt of gout,
Thank you for your experience, It helps me. I got hit rather quickly with multiple gout attacks as well, with no prior history of it. Hopefully we both get it under control quickly as to not suffer long term joint damage,
JP
In addition, to share:
There was apoint while we were figuring this whole gout thing out that i was peeing in a bottle in bed because it was so painful to get out to use the restroom, My experience is no where near as bad as some people..and i do not want to take away from their pain and suffering, , but it was a very difficult 3 months for me as well, just not knowing why my whole body hurt, and jsut that feeling of uncontroll of my world (it went from foot, to knees, to neck, to little joints in both feet, to wrist, etc, all within a month or two, all without prior pain or injury. and having the employment thing over my head didnt help.
Im just really curious about others success with allipurinol, and their time frame,
…..prior to this, i would not have even taken tylenol (honestly, ive had shoulder and back surgery, without touching narcotics during the recovery period), and now id take whatever i can to not go through the pain again, I just hope Allipurinol is the right drug for what i am experienceing, and it will take it all away eventual.
Damn, I.E. killed a wordy ppost:
To summariily recapitulate:
1) bad flare up when went from 100-200, and 200-300
2) since been on 300, have had a lot of “wannabe” flare ups where my knees wil swel, but at a lot lesser level than before
That's why I HATE starting with 100 mg. It casues more problems than it cures. Would a doctor say “It usually takes 1000 mg. penicillin/day to stop a strep attack so I'm going to prescribe 100 for a week and then 200 a week later, etc.?”
Im just really curious about others success with allipurinol, and their time frame,
Over a couple years I had about 5 attacks that lasted 3 days each (on crutches) and went away spontaneously with no consequence.
Finally got attack from Hell, bedridden in screetching pain for 9 days. Took 22 cochicine in one day and pain stopped iinstantly and completely. Started allopurinol 400mg. a week later and have not had an attack in over 20 years. So, for me, colchicne-allopurinol provided INSTANT remission.
If you have lingering pain, give colchicine a try.
I have been on allo for 3 months. Started at 300 but put myself up to 350. First 3 weeks were awful at 300 so I increased to 350…takes guts. Then, everything finally leveled out and the last 2 months have been NORMAL. UP about 4.5 and I have gone back to my wicked ways of eating red meat and seafood and fish and running and working out regularly.
I encourage gouties new to allo to hang in there. I got my life back. God bless.
Gary
I'm on week #3 of 100mg Allopurinol a day. I only eat fish or chicken once a week, no alcohol, not overweight and I'm still having twinges and warmth in my toes. This AM I woke up with toe pain and had to take 220mg of Naproxen, which took care of it.
I have been on AP since late Jan 2010. Started at 300mg and am now at 600mg a day. I was in the midst of a month + sequence of attacks when I started, Prednisone was taken for the swelling. I had a few more ove rthe course of the next two months. My last attack(June) came from my increase from 300 – 600mg a day, that attack was a short one thanks to an aggressive Prednisone treatment(started at 90mg a day). I have not had any since, I eat what I want and drink in moderation.
I've noticed that once the SUA comes down on meds, the attacks coming in are shorter, more sudden and go easier on the use of Colchicine. This is maybe as there isn't a sudden switch, as a 'backlog' of urate comes on stream in a NEW site- but the repeated flares can get wearing- all on OLD sites.
The fact that recovery is quicker is a plus- though 'months to go' is quite a wait & it's definitely a touchy time on diet/ alcoholic drinks.
I say to myself- Urate took years to get there, though!
jonpayson- hang in there. I asked the same question on a post about 2 months ago. I had been on uloric for 6 months, my UA levels were below 5 and I was still having flare ups every 4-6 weeks. I was at my wits end. Now, I have not had a flare up in 10 weeks and I feel great. I'm not all the way back yet, but pretty close. I couldn't walk without a cane for 6 months, not I kick the soccer ball around with my 10 year old son, run around with him, hiked a bit yesterday, and feel great.
how long does it take? no one knows- it seems a lot of people get better around the 2-3 month mark. I took longer, but I have reduced kidney function. If you had gout longer and more severe, you have more crystals to clear out and it takes longer. the lower you can safely get your UA, the quicker you will flush out old crystal- drink plenty of water. Prednisone and other prophalactics such as colchicine help prevent flare ups. At the first sign of a flare up, get on whatever pain and inflammation drugs you use right away.
Hang in there- it does eventually get better- but the time frame depends on the person.
jonpayson said:
I looked through past posts, and it seems like this discussion has been littered throughout as answers to different questions, but not directly related as its own post. ?
?
As a person who has been on allipurinol for about 6 weeks, but only been on the 300 level for 2.5 weeks, here is my experience:
?
1) bad flare up when went from 100-200, and 200-300
2) since been on 300, have had a lot of “wannabe” flare ups where my knees wil swel, but at a lot lesser level than before
3) most of the small pains in the foot, wrist, and even neck have dissapeared.
4) the site of my bad flare ups (Right Ankle, Right foot, left and right knees) feel warm and tingly regularly, but have not increased to the pain level of the past.
5) im still vegeetarian (have been for 8 weeks), but just started yesterday adding chicken into my diet every other day, and will hopefully gradually add the other meats as well)
?
My questions:
What are your experiences on time frames for allipurinol to work, Im definately better, but far from my usual activity level..ie, i can walk, but there is no way i could go for a jog right now, it would be too painful
?
Once you have been on the allipurinol, is your experience a pain free life??? how about the lifestyle of diet and alchohol while on the allipurinol, do you drink beer and eat meat?
?
Have any of you experienced full blown flare ups while on the CORRECT dose of allipurinol, Im religious about this stuff, and will never miss a dose, Im happy to be on it the rest of my life if it works,
?
Thanks for the help.
?
JP
tmdev said:You may be interested in my experience . After 4 years of suffering gout attacks? in the ankle ( one flare up a year)., my gP and I decided on starting on allupurinol about 3 months ago. Starting on 100ml then 200ml finally rising to 300mg after 3 weeks. No gout flares during this period ; after 1 week at 300mg had first flare up in ankle, then I have had a severe flare up every 8 days in the ankle for the last six weeks. My uric acid level during this period has been 2.4-3.0.
I am very concerned about how long this frequency will persist as I have had more gout flare ups whilst on 300mg of allupurinol than I had in the previous 3 years without treatment.
jonpayson said:
I looked through past posts, and it seems like this discussion has been littered throughout as answers to different questions, but not directly related as its own post. ?
?
As a person who has been on allipurinol for about 6 weeks, but only been on the 300 level for 2.5 weeks, here is my experience:
?
1) bad flare up when went from 100-200, and 200-300
2) since been on 300, have had a lot of “wannabe” flare ups where my knees wil swel, but at a lot lesser level than before
3) most of the small pains in the foot, wrist, and even neck have dissapeared.
4) the site of my bad flare ups (Right Ankle, Right foot, left and right knees) feel warm and tingly regularly, but have not increased to the pain level of the past.
5) im still vegeetarian (have been for 8 weeks), but just started yesterday adding chicken into my diet every other day, and will hopefully gradually add the other meats as well)
?
My questions:
What are your experiences on time frames for allipurinol to work, Im definately better, but far from my usual activity level..ie, i can walk, but there is no way i could go for a jog right now, it would be too painful
?
Once you have been on the allipurinol, is your experience a pain free life??? how about the lifestyle of diet and alchohol while on the allipurinol, do you drink beer and eat meat?
?
Have any of you experienced full blown flare ups while on the CORRECT dose of allipurinol, Im religious about this stuff, and will never miss a dose, Im happy to be on it the rest of my life if it works,
?
Thanks for the help.
?
JP
This format of the gout forum is closing.
?
Please continue the debate about gout attacks during treatment for lowering uric acid in the Lowering Uric Acid Gout Forum, where I hope you will learn to understand that, whilst not compulsory, gout flares are a common sign that you are finally clearing out old deposits.
I know it is hard at first, but I hope you can be comforted to some extent with the knowledge that you are doing something about the old deposits. These can build up slowly without flares, but they are slowly destroying bones, ligaments, tendons, and cartilage. Without this short term pain, you risk permanent joint damage.
My article that the new forum is built around, How Does Lowering Uric Acid Cause More Gout Attacks?, gives some tips on coping with these temporary flares brought on my lowering uric acid.
?
If that page does not help you, or if you still have related issues, then please use the new format gout forum.
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