Forum Replies Created
-
Posts
-
That’s kinda what I was thinking. What type of dose should I take prior and during and for how long? I think I took only 50-100mg for past flights.
zip2play said:
Post edited 1:40 pm ? June 11, 2010 by zip2play
Amazing?I have taken 4 of my 6 Z-pack (bronchitis) and I awoke with a fairly sharp flare. I walked it off and then it whacked me again for about a second. Gone now. So there might be a connection.
(But truth be told, I also had 1.5 Liters of Cabernet yesterday.
)I’ve never taken ciproflaxin.
Unfortunately for me, Colchicine interacted horribly with the Z-pack and almost had me in the hospital (atleast the 8 Colchicine’s I took interacted badly). I posted on this a while back.
Gout Gal, I was in the same boat as you at one point (I’m 31 yrs old now). After about a month and a half of the attack from hell! I was feeling a little better, but NOT good enough. Out of shear desperation I took Zips advice and popped 2 colchicine in the morning and took another ever hour for about the next 10 hrs (12 pills total). At that point I stopped as I felt no relief and felt it wasn’t working. The reactioon for me was delayed and the next day whoa! Lets say I ran to the bathroom a few times lol. Anyways, I felt great ever since. For some reason doctors do not like prescribing more than 2 colchicine’s per day. Dunno why.
tonyf501 said:
Vegetarian Guy, I am not a vegetarian but I found a non-medical vegetarian solution to my gout. Black Bean Broth, which has been discussed on this site. I also wanted to cut my foot off. I tried the medications and denying myself meat and beer and wine. Then I tried the BBB and the swelling went away in hours. I have been drinking it almost daily since then. It has been over 2 months, no medications at all and a normal diet, for me.
I highly suggest everyone with gout try this. It is cheap, natural, easy to make and it doesn’t taste bad. I like it cold.
Good luck
Tony
Aw but the question is, “WHAT IS YOUR SUA?” Just because attacks have ceased does not mean you’re not causing damage.
Let’s not kid ourselves, gout effing sucks! Without alcohol at times I’d go crazy! As I’m sure zip will tell you the same thing, AP (at the correct dose) should allow you to live a fairly normal lifestyle (ie: eat and drink most things). I think the more urate you dissolved with it prior, the better off you are. I’ve been on it for a little less than a year now and I have beer every weekend lol. Many times 8-12 light beers a night! There have been some ocassions where my joints were a little sore but they either healed quickly or a few colchicines cleared it right up.
What I would recommend doing (at least what I did) would be to get a home tester. Then drink a beer or two and test your levels a few times throughout the day/night as well as once during the middle of the night. If they are still at reasonable levels, up the drinking a bit and repeat.
Cheers!
hansinnm said:
Post edited 7:52 pm ? June 1, 2010 by hansinnm
odo said:
? Bunions generally occur on both feet with one worse than the other. The telltale sign of bunions is the big toe deviated at an angle towards the other toes and corrective surgery usually involves bone realignment i.e. breaking it and setting it back straight . ?
Do these feet qualify for BUNIONS and GOUT, Odo???
As you know, I have had gout for >25 years. 15 years ago I had the bunions removed surgically on both feet. I was walking WITHOUT crutches ( a blessing in disguise [the crutches, that is] 10/12/15 years later) two weeks later. No corrective surgery with bone realignment i.e. breaking it and setting it back straight, either. Neither did the podiatrist who performed the operation say one single word about gout/Uric Acid/MSU deposits.
I bet every penny I got left (and there aren?t too many to lose) that there were deposits after 11 years of gout history with ?official? UA level readings in the 9-11 mg/dl range. As you can see the ?bunion? on right foot grew back again and I?d bet whatever pennies I got left that that ?bunion? is 80-90% Uric Acid and/or MSU. Those craters, sure as hell, weren?t spewing bunion lava and bunion boulders over the last 5 months.
Btw, the volcano on my left toe is presently dormant, the crater is closed and the hot lava flow contained, temporarily. 2 or 3 of the 6 craters (difficult to judge because of the closeness of the craters) on my right foot/toe are still active, but no hot lava flow, just some boulders (tophi) are daily being extracted with the help of my Manuka Honey.
OMG! The horror!!! That should be an ad for UA therapy! I could have the caption “Got Allopurinol?!”
Glad to hear you’re doing better Nate! Just curious, what side effects do you get from Colchicine and do you experience them from one dose or many? The only side effetc I’ve ever heard of was the runs :)…Based off my first attack, I’d rather be running (or hobbling) to the crapper than dealing with days of pain!
hansinnm said:
GoutPal said:
.. Great observations, Hans.
Thanks too to zip2play for observations on the urate pool ?
vegetarianGuy [who] answered this much more eloquently in the first response
?[and there is poor] Nate, psychologically, at a loss to wonder why flares are still occuring?
Here we are, some of the most ?informed? (at least more than most of the ?medical profession?) and yet stil almost as much staggering in the dark as before.
We may never be 100% accurate with everything we say on this board/site, we’re all still learning and posting to the best of our knowledge. The nice thing with this site is that GP WILL make adjustments to posts to try to keep accurate info posted. It’s like in business, its all about the end goal. We may stagger along the way to get to that goal, but as long as we learn and eventually reach the goal the process is a success…in this case the goal is education as it relates to gout. We’ll get there my friend
Hi Veg,
You’re doing the same thing I did initially and that’s worry about things waaaay to far in the future. There are many many other things out there that can end us a lot faster than diabetes and gout. You seem to have a good grasp on your diet so that should definitely help you.In terms of kidneys, I would think that keeping SUA at a low would help preserve kidney function since urate is not building up in them over years. The only gray area I have in regards to the kidneys (and liver) is how AP will affect them over decades….especially if damage cannot be detected until its 60%+. But again there’s nothing we can do so we need to focus on the present and be greatful that it’s only gout we have.
Your post is interesting, and maybe someone with a little medical background can chime in as I just got back from a chiropractic presentation today and they claimed that organ damage cannot be detected until it has been at least 60% damaged. Any truth to this?
Hi Nate,
I’m really sorry to hear what you’re going through 🙁 You may have mentioned this already so I apologize if I missed it, but are you taking Colchicine now? and are you taking 2 Colchicine’s daily as a preventative measure (when you’re not having attacks)? If not I would recommend talking to your Dr about getting a RX. That stuff works GREAT!
Thanks for the replies guys!
I'll try and stay hydrated…it'll be a tough temptation when everyone at my pool is drinking a cold one though 🙁
What I'll probably do too is test my levels a few times after being out in the sun just to get a baseline
The question in my mind is, “are these minor aches and pains causing bone erosion?” I sure hope not because I have them in almost every joint randomly throughout the day…however have not had a major attack in 6-7 months now (knocking on wood). On a good note, I know people who have had gout for over 20 years and have only recently treated it with meds, and they are walking and moving just fine…so far 🙂
I guess you're the proof Zip since you've had low SUA for ac ouple decades. Have your joints gotten worse over the years? stayed the same or improved. I was under the assumption (wishful thinking I guess) that as long as you're below 6, you're safe. In terms of the minor inflammation point, I can say that personally I never had any joint pain, but after starting AP after that first crippling attack, I have probably 5 or 6 areas on my body that are always acting up…micro tophi maybe?? It could just be that some people are not as succeptible to the other joints “at first.”
I was a little confused though, when do we know there is no inflammation and at what SUA level? They kept mentioning below 6, but as you said 5-6 range may still not be low enough. I guess it depends on the build up of crystals in your joints…which would then also lead me to believe the sooner you get UA LOW thebetter shot you have at preventing damage. Makes me a bit leary about jogging now though!
nokka said:
Now, clearly, we have to be careful, to take things a step at a time. I still wouldn't want to have a full meal of, say, sardines to start, followed by liver. But I think once things stabilise it MAY be possible to have some of those foods we love. Just don't go overboard on them; and don't have them every day. Take it slow and see how you feel afterwards.
I think nokka said it best when he said “take it slow.” Everyone's body is different and reacts differently to certain foods. The beauty of a UA lowering drug is that if used correctly and in the right dose, you should be able to enjoy many (if not all of the forbidden) things in moderation.
This is something I've been wondering about for a while and was going to start a seperate thread, but will just add to Nates. Often you hear about people who can use a uricosic like Probenecid or whatever instead of AP or uloric. My first question is, is Probenecid safer and/or more effective than AP/Uloric?
My second question is related to the 24 hr urine test. I never had one done and have been on AP for 5-6 months now. If a person like me wanted to know if they were an underexcreter/overproducer, would it be worth it to eventually have this test done? and what would be the safest way? I'm assuming a person would need to ween of AP for a good 1-2 weeks then take the test…while keeping Colchicine handy and possible a home UA tester.
Does Colchicine have a shelf life? I dont really use it often but have about 250 stocked up “just in case” 🙂
Welcome, to the board. Wow! sorry to hear about your pain! I would say imo that with a UA of 2.3-3.0 I would not suspect gout…maybe pseudogout?
GoutPal said:
Isn't jogging for gouties in the same class as rock climbing for vertigo sufferers?
I'm starting to think it depends on the person. Everyone's body is different and it probably depends how much urate is already laid down. I CAN run a full sprint right now if I wanted with no problems/pain but instead I jog with extreme caution at a mild pace (6mph). If my joints ever start to feel uncomfortable I'll stop. Also, while it damn near lasted 2 months, I've only had 1 major gout attack in my life thus far <again, knocking on wood>. Thank God for AP! Last test on Tuesday was 3.6!
Goutgal said:
I really don't know how anyone can jog, after a gout attack. I guess I'm reading that many do this. It's been 8 weeks since my attack, and I'm just starting to walk more briskly, and even at that, I watch for a pebble, uneven bricks, or a cracked sidewalk, which (I've learned) causes some pain, or turns my ankle the wrong way. And, I've exercised a number of years in the gym, and have fast walked. That said, I understand we each have our own type/area of pain. My hat's off to all you joggers and fast walkers.
Goutgal,
Keep in mind, its been 8-9 months since my last attack. There is no way I would have jogged immediately following the attack. Aside from some random general soreness, I have full range of motion in my joints. Actually, my joints typically feel better when I'm jogging. I can say, aside from the general soreness at times, I “almost” feel back to normal <knock on wood>
rdavisiii said:
Do a workout you love, more importantly a workout you will do, just be cautious in opening up the throttle.
Wow! 5-6 miles nearly everyday. Anyways I completely agree about exercising caution when opening up the throttle. This is why I keep jogging to only 1-2 miles/day. If I start feeling any pain in the future I'll certainly discontinue until inflammation subsides. I guess in my original post I was more or less asking if I could be causing damage even though I dont have pain. I'd like to have kids and be able to keep up with them one day lol
The problem is that I like to jog outside (not a fan of machines) and step machines/ellipticals seem to always hurt my lower back for some reason. I'm not referring to running a marathon, but merely 1-2 miles/day to keep active.
Thank for the reply Trev. I do understand what your saying. I don't have any pain while jogging and my SUA has been averaging around 4-4.5 for the past 5+ months (3.6 yesterday). Do you think there is less of a chance of me having issues since my levels are low and new crystals should not be forming? Again, I never had any joint pain whatsoever prior to my first gout attack and I would hate to give up jogging 🙁
PS: I'm referring to me jogging when there is no imflammation at the time
Be careful with that type of therapy. I wouldn't want anyone rubbing an old gout site…sounds like a recipe for breaking up more crystals and causing another flare up.
Anyways, in regards to your pain, I've been on 300mg of AP for about 5 months and I still have pain that comes and goes (although not like I did during that first attack). I think like zip said, each day you keep your SUA low is a step in the right direction and hopefully one of these days we'll be at 99%+ mobility!
