[Dianne]

Dear Everyone,

Thank you so much for all these great suggestions..have done the Bs route and B-12…occasionally eat an egg white so am probably ok there…I have every anti fungal known to woman…Nystatin, etc. ..its not a fungus… It could be the colchicine..that is a real possibility…

Am not touching laisx or hctz again..immediate reaction..had similar reaction from allo back in 1985…almost got into skin shedding..I think I have some cross reactivity from those days..and have anti bodies that all of a sudden have hit some kind of critical mass in the past few months…..Dianne is an old girl now..bummer…better than the alternative…

Dianne

[Dianne]

Dear Gout Guy,

Thanks so much for responding… I agree…my answer lies with some chick in one of the “flyover” states but she is a recluse and a Luddite.    Ted Kaczynski's sister no doubt.

OK… next question for you various sages out there on this incredibly literate and funny website..

Who has some knowledge about suddenly dveloping allergies to sulfa drugs one has been one forever..like 25 years… (lasix, HCTZ, Colbenemid)?? I have these bizarre red spots under the skin of my lips that appeared years ago ( I ignored them)…THEN about 2 months ago I developed redness at the corners of my lips and a red lesion on the bottom that would not heal (not fungus, not cancer-checked that out)…since then I have tired various regimens : 1.) no HCTZ, lasix 10 mg/colbenemid,micardis (red spots backed off some-gout twinges) 2.) Edecrin 12.5 mg, colbenemid, micardis (lots of twinges-red spots better-Edecrin is a loop, non sulfa)  3.) YESTERDAY, lasix 20mg, Micardis, colbenemid 1.5 pills-redness back with a vengeance..

so now I am thinking it is dose dependent sulfa allergy..which leaves me thinking I need to bite the $240  monthly bullet here in USA and try Uloric…cost, new drug, etc. all depressing..

Please share your thinking on this if you have any.  Back in 1985 I almost died from an Allopurinol allergy so I am sure I have lots of lurking antibodies to various things…cross sensitivity.

I am skinny, vegan, eat low on the purine scale, avoid salt and processed food..living on low salt non puyrine bread, fruit, veggies and trying to stay under 30 grams of protein daily but am willing to do whatever might be the cure

Thanks.

Dianne

[Dianne]

Dear Gout Guy,

Thanks so much for responding… I agree…my answer lies with some chick in one of the “flyover” states but she is a recluse and a Luddite.    Ted Kaczynski's sister no doubt.

OK… next question for you various sages out there on this incredibly literate and funny website..

Who has some knowledge about suddenly dveloping allergies to sulfa drugs one has been one forever..like 25 years… (lasix, HCTZ, Colbenemid)?? I have these bizarre red spots under the skin of my lips that appeared years ago ( I ignored them)…THEN about 2 months ago I developed redness at the corners of my lips and a red lesion on the bottom that would not heal (not fungus, not cancer-checked that out)…since then I have tired various regimens : 1.) no HCTZ, lasix 10 mg/colbenemid,micardis (red spots backed off some-gout twinges) 2.) Edecrin 12.5 mg, colbenemid, micardis (lots of twinges-red spots better-Edecrin is a loop, non sulfa)  3.) YESTERDAY, lasix 20mg, Micardis, colbenemid 1.5 pills-redness back with a vengeance..

so now I am thinking it is dose dependent sulfa allergy..which leaves me thinking I need to bite the $240  monthly bullet here in USA and try Uloric…cost, new drug, etc. all depressing..

Please share your thinking on this if you have any.  Back in 1985 I almost died from an Allopurinol allergy so I am sure I have lots of lurking antibodies to various things…cross sensitivity.

I am skinny, vegan, eat low on the purine scale, avoid salt and processed food..living on low salt non puyrine bread, fruit, veggies and trying to stay under 30 grams of protein daily but am willing to do whatever might be the cure

Thanks.

Dianne

[Dianne]

beachams2 said:

Post edited 4:23 am – July 11, 2010 by beachams2

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My husband suffers from gout as well as a SEVERE case of “white coat syndrome”.  I've watched him suffer time and time again from the symptoms of gout for the last ten years.  I feel so helpless and worry about nagging him to death about getting help.  He chooses to suffer rather than go to a Dr.  His health is deteriorating rapidly and the gout is acting up more and more frequently.  His legs and elbows are now grossly deformed and, even when he's not having a flair up…..he limps when walking because of the damage done to his joints.  It won't be long before he can't walk.  Im so afraid of the future.  He is a VERY intelligent man and chooses to suffer rather than see a Dr.  I'm having a REALLY difficult time understanding why he would choose the path he has.  Is anyone able to make sense of this?    

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As a long term recovered alcoholic and member of AA who has watched people kill themselves with alcohol and other drugs, I would say, get help for yourself…your husband's history is like an active alcoholic who will not quit in the face of disabilty and death….alcoholism has a program for that ..its called Al-Anon…..is he a food addict?..food addcition can contribute mightily to gout..there is a 12 step program for food..two of them in fact…I would quit nagging and help myself…Al-Anon says let people experience their own consequences…when we do for others what they should do for themselves, we infantilze them…and usually they will never change..as a person who was active in my addiction, it was never my fault..I was full of self pity…and people in AA..said…”take action or die”…I finally took action in 1984..and guess what..I got better…

Good luck honey…get help..its out there…

[Author]

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