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JohnnyBrewParticipant
I just wanted to let everyone know that my Dr just called and my uric acid level was 4.5!!!!!!!!!!!! and just over 8 months of painful flare ups and changes in Alli of 100 to 200 and now at 300mgs. I am hoping that I'm in the clear. It's been one hell of a ride and my uric acid level when I started this whole thing was 10.9 Its looking up for ol' JohnnyBrew.
Wish me luck and thanks for everyones advice
Best to all of you in '10
JohnnyBrewParticipantJust the word “maggots” makes me cringe.
JohnnyBrewParticipantPaul everything that I am learning about taking alli and enjoying the forbidden fruits say that yes you can but only dependant on your uric acid level being below 6 so that means that you need to get tested to see what your current level is and if it is below 6 you should be able to enjoy those forbidden fruits.
Good Luck,
JohnnyBrew
JohnnyBrewParticipantClay, I am curious as to how you were diagnosed with gout?
What is your uric acid level?
Gout I'm learning and dealing with now for just over a year is managable and I too am young not as young as you but interms of gout I am at 34 meaning I was 33 when diagnosed.
I would not sweat the kidney thing unless the Dr runs all the tests to prove that there is a problem.
Good luck and you'll love this forum as there are a lot of well educated people to help.
Keep your spirits up,
JohnnyBrew
JohnnyBrewParticipantWOW Zip that is a crazy story and I do have come colchricine but hope that my flare ups will be a thing of the past. I'm hoping to get my results today to find out my uric acid level. Wish me luck the last time it was 7.4 hoping 6 or below this time.
JohnnyBrewParticipantMany of us were welcomed by Santa with an attack. Ho ho ho and thanks a lot you big fat bearded bastard.
Hang in there Nate your on the right path.
JohnnyBrewParticipantThanks Nate and good luck to you as well. Today is my best day yet since Nov 12th so I am hopeful and staying positive.
JohnnyBrewParticipantZip thanks for the info.
The colchicine regiment is very tough for me due to the fact that I have diarrhea very easy already and for me to go through a flare were I'm bedridden and run to the bathroom that frequently is almost not worth it. I have done the colchicine regiment on three different occasions now since I was diagnosed with gout. I use crutches and my bathroom is not set up for handicap access. To even sit on the toilet is the biggest challenge without plopping down and breaking it. Then to sit there with my foot on fire while going is complete torture.
The reason I speak of Disability is because even after a flare I never seem to heal 100% and end up limping around till I have another flare and this is going on now for almost a year. I know that I'm lowering my uric acid and losing weight and going through all this in hopes to never go through all this later in life, but its the not knowing how much longer I need to go through these flares that make me worried about my job and paying the bills if I get fired. If these flares don't stop for say a couple of months I'm going to no doubt lose my job and will need some sort of income to supplement till they stop completely.
JohnnyBrewParticipantGoutPal said:
Post edited 1:20 am – December 24, 2009 by GoutPal
There should be no reason with current medication for anyone to be disabled by gout.
Allopurinol or similar uric acid lowering treatment to get rid of crippling crystals, with short term pain relief as required.
It is one of the most easily treated of the rheumatic diseases, though it does require a competent medic and a co-operative patient. The common causes of treatment failure are inadequate medication either due to under-dosing by the doctor or failure of the patient to take the medicine as prescribed.
Of course, the doctor needs to recognize gout in the first place. Unbelievably, in 2006, the poor soul pictured here was reported in Mandell's Clinical Manifestations Of Hyperuricemia And Gout. He had been referred by his doctor with unrecognized gout!
That is a tough picture to look at. You are right in all that you said and yes I'm on allipurinol 300mgs since Oct and everything that I read say that when there is an adjustment to the mgs you can expect a flare. When I went from 100 to 200 mg I was laid up for a month and now the flare up from the 300mg adjustment has caused the worst flare up ever. I had mentioned before I'd been laid up since 11/12 of this yr. Playing hookie at my job can last only so long before I'm fired and that is why I asked if there was temporary disability because I know it won't last forever. I hope that all the adjustments and pain that I'm going through doesn't last much longer and that with the hopes of what I'm going through now will benefit me greatly by having a normal and gout free lifestyle in the future.
JohnnyBrewParticipantzip2play said:
I see no reason why gout should not be viewed like any other disabling condition.
For a handicapped sticker, all that's needed is a note from your doctor.
Some people with advanced chronic gouty arthritis can be as crippled as someone with rheumatoid arthritis. Thank god for allopurinol that prevents this from being an inevitable outcome with gout.
I have been in bad shape since 11/12 of this yr and think that if this lasts any longer and I lose my job what can I do but to file for temporary disability
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