Forum Replies Created
-
Posts
-
How long have you been taking Allopurinal? Were you taking 300 mgs when you stopped? What was your uric acid level? Have you tried Colchicine to take the edge off the attacks? ?As far as the NSAIDs some guys have been taking these daily for years.?What dose will?your doctor start you back on? Thats hard to say?cause they all seem to have a different idea of whats best.?What ever you and your doctor choose to do?I wish you luck. Limpy.
So?I take it you are?on your feet most of the day. Last year my feet got to feeling so good?I thought maybe?I could ween myself off colchicine that lasted about a week. The pain came back so bad?I had to get back on it i've tried this a couple of times?I just can't make it without it. Limpy
I have pretty much to sme pain year round. Not the swelling or bring a tear to your eye. But the kind that the longer i'm on my feet the worse it gets. One Colchicine twice a day every day just to keep the beast at bay.
Anyone know what this guys problem is with this site ? Someone posted that he's pissed at Keith. I'll never understand people that go out of their way to hurt people that are just trying to help someone else. Must be their upbringing. Sad. Limpy
Keith summed it up pretty well. Sounds like it's allop time. Make sure you get a script for Colchicine it's the best thing to stop the attacks. Good luck Limpy
Yeah?it sounds like your on the right track now. Just stay with it i'm sure you'll get better. Best of luck. Limpy
As far as itching i've never had it from Gout. As far as drinking?I drank on average 10 beers a day for 30 years that's no bull. Two years and 8 months ago?my heart?went into Afib.?I haven't drank since. No one but you can stop your drinking.?I still crave a beer from time to time but?I know for me one is to many and a million isn't enough. As far as Gout and drinking more than a few members on here have said they still have a few beers and it dosen't hurt them. As long as they stay on the Allop and keep their acid levels down. Good luck. Limpy
I'm not being a smart ass but why did you wait so long to start Allop? It took me 8 months on and off steriods before my rhummy finally put me on Colchicine to stop the pain. Looking back?I think he was an ass for not starting me on it sooner. My acid level on?my last test was under 4 and i've been taking Allop for about 16 months and still have pain daily. But it's not tears rolling out of the eye kind of pain?I was in when?I started getting these attacks. It sounds like you need to increase the Allop cause you are right at the level where crystals form and dissolve putting you in a bad place.?All?I can tell you is it will get better once you get your acid level down and keep it there. Good luck hang in there. Limpy
I?never thought about it. But now you brought it up i'm interested in what other members think about this. Thanks.
I WOULDN'T BE TO COCKY IF YOU TWO GET THE ATTACK FROM HELL YOU'LL KNOW WHAT SUFFERING IS ALL ABOUT. I HOPE YOU NEVER FIND OUT . GOOD LUCK.
Bestest,?I know what you going thru i've been on 200 mgs of?Allop since May of last year.?Altho?I still have pain in my feet everyday. It's a hell of a lot?better than it was when?I first started and had tears rolling out of my eyes just walking ten feet to the bathroom. That went on for months.?I never had pain like that. Over time if your like?most of the?people on here all your pain will pass and this will all be just a bad memory. Hang in there it will get better. Good luck.
Piyo, The Colchicine does help. In the passed year I've tried to ween off of?it. I'll be ok for about a week then the pain comes back so strong?I have no choice but to get back on it.?I would love to get off it and only take it if?I have a flare. Besides the price jumping from $28 to $310 for a months supply. This running to the?bathroom on a moments notice sucks. The last time?I went to the rheumy he?gave me a?script for 500MGs of?Naproxen one tab twice a day?for the pain?I must admit?I haven't really given them a try. Because of going into Afib last Nov I've been scared of taking any more meds than?I have to. Even tho my heart dr. said they would be ok for me. As far as Prednisone it would stop the attacks for as long as?I was on it. But as soon as?I stopped taking it they would come right back and I'd have to up up the dose. That went on for 8 months. Till the dr. finaly put me on Colchicine.?I still don't know why in hell he waited so long to do that.?I hope?I never have to take?Prednisine again as i'm sure it was a big factor in me going into Afib.
Piyo,?I wish you better luck then i've had trying to tame this beast. I've been taking 200mgs of Allo a day for 18 months. Along with 1 Colchicine twice a day for over a year. My last blood test showed my acid was under 4 but the pain is still there every day the longer i'm on my feet the worse it gets. Like Keith said stay a way from the steroids if you can. They messed up my heart.
Jeff B said:
Dare I ask if anyone has tried this Krystexxa? I've been away from this forum for a long time, but the gout? She never stays away for too long, so I'm back again.
Done tried AP, colcrys, uloric, probenecid, indocin, etc. Might as well try a new one too if it doesn't kill me.
And no, triathloning, mountain bike racing, a great diet, and no alcohol wasn't enough to keep the beast at bay.
How long were you on Allo????
?
Did you quit taking it?
Tavery said:
The US Government has made a broad law that (unless specifically designed) no pill medication can have a shelf life longer than 36…..well, to be honest, they mandated that any medication that will be advertised as having a longer shelflife will need to provide a whole slate of additional documentation to the FDA in support of that claim. So the drug companies said screw it and now all medications have a expiriation of 36 months or less.
Your Pharmacy does not know exactly when each bottle of medication was manufactured or how long it sat in a warehouse before being shipped to them so they made a general rule that all medications expire about a year after the order is filled. Liquid meds have an even shorter life.
Thousands of tons of medications expire every year and are still completely effective. They are usually shipped to areas such as Africa where people could care less about some arbitrary date set by a government.
Assuming the botttle has not be subjected to moisture, high heat or direct sunlight for long periods of time, most pill medications last five years or more without a problem. If the pill is still firm and looks ok and smells ok, it is still probably good.
Worst case is that it begins to lose effectiveness as it ages. The half-life of most kinds of antibiotics is approximately 7 years. Meaning at 7 years you would need a double dose. I dont know the numbers for Allopurinol.
So, to answer your question. Yes, go ahead and take the older pills if they feel, look and smell ok. Take your normal dose. If it is slightly less effective…its better than taking nothing. Do not try to raise your dosage to compensate though because you dont know how much effectiveness it has lost and the danger of taking too much is worse than taking less than normal.
Thanks for the info. Thats what?I was looking for.
I?have more on the way but its mail order. So?I won't get it for a few days. I've been taking Allo every day for 18 months till my insurance ran out. And?I still haven't ran out?I was asking a simple question. Rather the old stuff would still be good to take till my order gets here??
I've seen where Zip has said he taken Colchicine that was over 10 years old. Thanks for the help 🙂Hansinnm,?i know your right it just ticks me off that a person can buy the same drug just accross the boarder for 1/10 the price. And the doctors we hire to keep us healthly stand by and won't say a word against it. LIMPY
toofast said:
Ok, so my Rheumatologist told me that a Uric Acid level ON MEDS (uloric) of 6.5 was just perfect…and that he had succeeded.?
Well I was still having attacks, living on Colchicine, etc….
Found a doc that knew a thing or three..
Off Colchicine
No more attacks
on cheap allopurinol (300 mg)
uric acid is 5.2 –
?
BUT every body is different…plus as mentioned your UA is LOW around an attack.
?
Perhaps a second opinion with another doc (non rheumatollgist) is in order.
Hi Toofast, I've had a second opinion he said Gout. He also told told me that it might take up to a year for for the meds to take full effect but than it would be like?I've never had Gout as long as?I stay on the Allop. So far he's been right. After 8 months the only time?I have a real attack is when?I come off the Colchicine.?I just hate to think that I'll have to take?it for the rest of my life just to be able to walk normal. LIMPY
hansinnm said:
limpy said:
…. The same doctor that gave me the Naproxen said it was heart healthy anyone heard of this? If I remember the first warnings on this drug were stroke and heart attack. Any input on this will be greatly appreciated thanks. LIMPY
Why don't you google naproxen and see for yourself.
Hansinnm, Thanks for the help why didn't?I think of that. Oh wait?I did one site says low chance of doing any harm another says very risky. So?I thought this being a great place to get peoples opinions I'd ask here. For me Google isn't always the best place to get answers. LIMPY
toofast said:
my personal opinion ?? your ua levels are not low enough to be attack free.
an attack for you could be a spike from the 5.7 to say 6.2 or whatever.? all our bodies react differently…if you are still getting frequent attacks that often, try bumping up your allopurinol to 300MG
?
I would NOT want to take any PAIN bill continiously…just not a great idea.
Toofast' I'm with you on not wanting to take any more pills than?I have to. And you may be right about a spike of acid but?I can't see why?I would get a attack if my level was truly 3.2. When?I first started taking the Colchicine the Rhumatologist said I'd be on it 8 to 10 months. That to me is to long that's why I've tried twice to wean myself off it but both times within about a week I've had an attack. Another thing besides not wanting to take this drug any longer than?I have to is the price. There's a good chance my wife will be losing her job in the next year and if that happens we'll most likely loose our insurance also. That would mean paying over $300 a month just for the Colchicine and there's no way we can afford that plus the other meds we both take. My Rhumatologist talked to me about raising my Allop up to 300mgs if my numbers were still above 5.5 but with this last test i'm sure that has gone out the window. I'd still like to know if anyone has had any luck with Naproxen for the pain and swelling? Thanks guys LIMPY
Great post.?I just hope the FDA never decides to test Allopurinol again I'd hate to see the price of it go up like Colchicine has. Ya got to love our goverment looking out for us like they do. LIMPY
I?second zips reply get a different doctor. My guess is you haven't went thru enough pain yet. Sooner or later the Gout attack?from hell will strike. And you'll be wishing you had stayed on the Allopurinol.?I hope for your sake it doesn't happen but the odds are against you. Good luck., LIMPY
