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Viewing 18 posts - 121 through 138 (of 138 total)
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  • in reply to: Allopurinol Newbie #9331
    limpy
    Participant

    HAWG HUNTER, Welcome the the club nobody wants to join (as someone else once posted) I have to agree with you this is a great site. I wish I would have found last year when I first started having my attacks but as they say. Better late than never. I'm going to guess from your user name your from the South I'm I right? Good luck with your Gout. LIMPY

    in reply to: I am the newest member #9323
    limpy
    Participant

    I have to agree with Trev my MD put me on a blood pressure pill. Then swithed me to one with HCTZ when I was getting kidny stones. That was a few years back. When I started having Gout type pain last year I was taken off the HCTZ and given the same med. without the water pill. But that was two late I guess. Looking back even if there had been a warning on the label that it could give me Gout I probably would have taken it anyway not really knowing what Gout was. Having just had them go in with a metal tube and remove a stone. The pain from the kidney stone was the only thing that I've had that was close to the pain of Gout. But that only lasted till they put me out and went in and got it. Also when I went to see a Rhumatologist to get a second opinoin on my Gout. One of his questions was if I ever had kidney stones? So are kidney stones common with people with high uric acid?

    in reply to: Brutal 4 Week Flare-Up – Sanity teetering! #9299
    limpy
    Participant

    George, sorry to here about your pain. I've been going thu the same thing. Thankfully most of mine has retreated for now. I was up and down on doses of Pred. starting at 20mgs and going as high as 60mgs.  That went on for a couple of months it would get better but as soon as i would start to wean off of it. Boom I'd get another flare. After a little over a month on the Allpo it started to help. I've been off the Pred. for just about 2 weeks. I started Allpo the 22nd of May and got another attack on the 27th but the doctor said stay on it. Also started .60 Colchicine 1 pill 2 times a day on the 16th of June for pain. It's hard to believe how slow time goes when your in pain from this. Hang in there after you get on the right meds it will get better. As far as your acid level it will drop during a flare. I'm sure you'll get some help on here from people that know alot more about this curse then me. Good luck LIMPY

    in reply to: 1st attack, on anti-inflams, but getting worse, help! #9288
    limpy
    Participant

    Anyone that has had a big attack of gout knows what your going thu and if so. The last thing they are thinking is that your a cry baby. This stuff can bring a tear to the toughtest mans eyes. It's easy to get depressed over this curse. But keep the faith. Find a good Rhumatologist. As there seem to be a lot MD's that don't know how to treat gout. Good luck. LIMPY

    in reply to: 1st attack, on anti-inflams, but getting worse, help! #9276
    limpy
    Participant

    When I first started getting my attacks it started in the joint of my big toe. That only happened twice and was over after a couple of days. It felt like I had broken it. Then last Sept. I started getting it in my ankles first one and then the other. It felt like the worst sprained ankles I've ever had. It would get so bad all I could do is walk on the very outside edge of my foot. When I wasn't on chruches. I like you had my acid level tested it came back normal like yours. What they didn't tell me was the levels can drop while your having an attack so that test is pretty much use less. I went thu the Winter trying the fight this with one home remedy after another. The only thing that I can say that worked at all was a half a teaspoon of baking soda in 8 oz. of water 3 to 4 time a day. But it will cause your blood pressure to go up. But it did help me get by for awhile. The only way to find out for sure that you have Gout is to have fluid taken from the joint and have it tested. For me it took the Rhumatologist twice two get it and then he put a big scare in me saying he thought it was R.A. and not Gout. I was worried about having the fluid drawen out of the joint but other then the bee sting type of shot to numb it thats about all I felt. As far the pain and swelling Prednisone would knock it out. The only way for most people to control Gout is with meds that they will be on for the rest of their life. That's where I'm at now I started Allopurinol 2 month ago and Colchicine about a month ago. I still have pain day to day but I'm not having the heavy duty attacks I was. And in time I hope to be pain free. The good thing is you found this site. There's a ton of info on here and a lot of good people to point you in the right direction. Good luck. LIMPY

    limpy
    Participant

    zip2play said:

    Richard,

    I'm glad things arre getting better. I wish your doctor would aquiesce in the 300 mg. allopurinol. Here's the kind of doctor psychology that I hate: “I am not sure of my diagnosis so I will prescribe only HALF an effective dose!” So instead of being right 50% of the time he is wrong 100%.

    Is one of your BP meds ? Any diuretics?hydrochlorothiazide

    Hello Zippy I'm glad you posted on my thread as I value your opinion.


    The two BP meds I take are Terazosin and Fosinopril I use to take Monopril that had a water pill in it. It was suppose to help with the kidney stones I was getting at the time. Since then I've learned that it may have been the original trigger for my gout. What's your opinion on that thanks? Also I saw my MD yesterday and he looked over my numbers from the blood test the Rhumatologist took and said everything looks good. I ask him about uping the dose on my allop. He said we should just leave it at 200 mgs. so I guess I'm stuck there till I see my new Rhumatologist in Aug. LIMPY

    limpy
    Participant

    I must say if there is a good side to getting gout. It's I'm eating a lot better then I use to. I don't eat as much red meat as I use to and I'm eating a lot more fruits and have cut back on the sweets. I went from 1 to 2 cans of pop a day to maybe 2 a week. I'm sure thats where some of the weight went. As far as ibprofen the docter said not to take it while I was on prednisone. The colchicine seems to be holding most of the pain at bay(knock on wood) right now. LIMPY

    limpy
    Participant

    vegetarianGuy said:

    Limpy another thing I noticed is that you are exactly same height as me but lot heavier. If my conversion is correct then in your case 218 lbs = 99.1 kg which is almost 40 kgs more than my weight. More mass = more blood uric acid production + more weight/stress on the joints.

    Btw unlike most when I started AlloP 6 months ago I did not and still don't take any Colchicine. Doc gave me 400mg Iboprofene to take 3-4 times daily but I never took them Surprised Ok I took maybe 20 tablets in 6 months Wink I just felt that being on AlloP was one tablet too many already so did not want to get hooked on Iboprofene too.

    I also wanted to feel  what my body was actually feeling. Btw the times I took  Ibofrofen it did jack *** for my pain!

    Yeah I know I'm over weight but I have lost 13# since Jan. and hope to loose more. It's hard to burn off extra weight when you can do much more than walk from the couch to bathroom or to the bedroom. I would love to be able to go out and mow the yard cut and split some wood tinker around the shop. But my feet just won't let me. And the way I feel right now I wonder if I'll ever will be able to do those things again. It's very depressing.  I've tried to get my Rhumy to up my dose of Allop. but he just says no. I'm going to see my MD. tomorrow and see what he thinks about it.  Thanks for all the replys. LIMPY


    in reply to: Colchicnine side effects #9163
    limpy
    Participant

    Caveman, I have no idea why they don't work for you. I hope someone else will chime in here. Good luck. LIMPY

    in reply to: Colchicnine side effects #9161
    limpy
    Participant

    Caveman, I take 0.60 Colchicine tablets. There a little smaller then the end of a eraser on a pencil and alot bigger than a pin head. I would make a trip back to the drug store to make sure they gave you the right meds. I'm sure if I took as many of these as you have I'd be camped in the bathroom. Good luck. LIMPY

    in reply to: it was #4706
    limpy
    Participant

    ALLPO is not a sometime drug you have to stay on it for the rest of your life. Colchine can be used as a low dose maintenance drug or at a higher dose for a short period to knock out a flare up of gout. The best thing is you found your way to this site. Theres a ton of info on here you just have to look or ask. GOOD LUCK. LIMPY

    in reply to: Colchicnine side effects #4709
    limpy
    Participant

    I started on it the 16th of June taking one 0.6mg tablet twice a day. The first few days it didn't seem to bother me at all but after that. I've been running to to bathroom two or three times a day. I was hoping that my body would ajust to it but that hasn't happened. But if it will hold off the pain and swelling I guess I'll take the trade off for a while till I get the full effects of the ALLOP. This is the only side effect I've had. Of course everybody reacts different to meds. If you give it a try I hope you do ok on it .  Also i couldn't find a way to do a search on here either. Maybe someone else can help with that. Good luck.  Limpy

    in reply to: reducing UA (newbie gouty) #9101
    limpy
    Participant

    Hello Daniel I'm a newby here myself and just found out the first week in May that I have Gout. I've been on Allopurinol for a little over a month. I'm still having attacks but hoping they will soon be a thing of the past. I've had no side effects from Allopurinol. And my blood tests are all good. I think a lot of the negetive things said about this drug are from people that are trying to sell a cure that doesn't exist. I've read some post on different sites where some people have been on this for 20 to 30 years with no problems. That being said if you do go on it make sure you keep your doctor appointmemts. Good luck. LIMPY

    in reply to: This is a club I didnt want to join (introduction) #9051
    limpy
    Participant

    I've had my heart rate pick up and also skip a few beats. My MD said it could have been from my Rhuematologist telling me to go from 60mg a day to none over a 2 week period. I dropped from 60mg to 30 mg and that when my heart started acting up. My MD said it was to big a drop and that could triggered it but their not sure. So he told me to go back to 50mg for 3 days them drop 10mg every 3 day till i got down to 10 mg then 5mg for 3 days then off them altogether. I'm at 30mg today and going down to 20mg tomorrow I just hope the pain stays away and my heart settles down. I'm on a 24 hour heart moniter right now and have a appointment to see a Cardiologist Friday. Wish me luck. LIMPY

    in reply to: This is a club I didnt want to join (introduction) #9025
    limpy
    Participant

    zip2play, Thanks for the input. I'll call my doctor in the morning and see what he says. I'd love to get off the prednisone. I've been on it to long. But the pain is a lot to take without it.

    in reply to: newby here #9022
    limpy
    Participant

    Utubelite said:

    Hi Limpy,

    it is typical of Gout to get such bouts many times before it settles down. More so if the gout area is put under pressure like walking a bit too early. In my case, whenever I was stopping Colchcine and walking out of house, within 1-2 days, I would get the pain and swelling back. So, I went through many bllod tests including Serum Uric Acid(SUA) and was put on Allopurinol /Colchcine. That was almost 11 months back. Since then, though I got many scary sensations and still get them some times( twinges, pain in ankles /knee etc.), there has been no gout attack and no pain killer for gout since July 28 last year.

    It is not clear from your post what are your SUA levels, what treatment are you taking to manage gout e.g. Allopurinol or something similar etc? If you can provide some more details, that would help to better understand your situation and many people on this forum would advise you much better than what you would probably get from your medico.

    UTUBELITE Are you still on the Allopurinal/ Colchcine?


    in reply to: newby here #9021
    limpy
    Participant

    Hello UTUBE I know when they tested my blood the 1st  time they just said it was in the normal range whatever that is. Then the next one was a high. after 2 weeks on 200 MG  ALLOP. It was 5.5 I was told that was good. I'm on one  0.6 Colchcine pill twice a day. and still taking Prednisone that i hope to get off of soon.

    in reply to: This is a club I didnt want to join (introduction) #9019
    limpy
    Participant

    I feel you pain. I've never been so depressed. Back in Dec. or Jan. I had my foot drained and then shot up with Cortizone the rhuematologist said I'd be alot better by the weekend. That was on a Wednesday. That Saturday it blew up again and hurt so bad just a little movement would just about bring tears to my eyes. Right now I've been on Allopurinol for about a month Prednisone on and off for two years and Colchicine since june 16th.  I sure hope it does the trick. I hope you find something that works for you. LIMPY

Viewing 18 posts - 121 through 138 (of 138 total)